Resources & Links related to Cancer & Non-Hodgkins Lymphoma|
(spiritual & emotional resources are found here)
One of the most helpful sources for NHL information is the NHLcyberfamily site & the affiliated email loop (you join at yahoogroups then you can ask questions & have them answered by dozens of current & former NHL patients).
These are the "Welcome to NHL" emails that I received when I initially posted on the loop.
At the NHLcyberfamily site, there are the following resources (& LOTS more):
What is Lymphoma?
Types of Non-Hodgkin's Lymphoma
NHL for Dummies
Links to NHL information divided into categories,
with summaries of what each site can help explain.
There are also several helpful downloads at the NHLcyberfamily site, including a list of questions to ask your doctor and a checklist of what you'll need for chemotherapy.
These websites can provide additional information:
CancerBack-up at www.cancerbackup.org.uk
Lymphoma Research Foundation at www.lymphoma.org
American Cancer Society at www.cancer.org
National Cancer Institute at www.cancer.gov
Leukemia & Lymphoma Society at www.leukemia.org
Lymphoma information at www.lymphomainfo.net
Blood & Marrow Transplant Information Network at www.bmtinfonet.org
WebMD at www.webmd.com
WrongDiagnosis at www.wrongdiagnosis.com
Once Mom was diagnosed & began treatment, we learned how ghastly expensive chemotherapy is (hers was $26,000 for EACH of her six original treatments). Unfortunately, her insurance was not set up to rise to the occasion. To get additional funding we used these helpful resources: (and we prayed for provision A LOT, and gave thanks to God as expenses beyond my comprehension were miraculously met)
The National Transplant Assistance Fund (NTAF) helps raise money to cover uninsured medical expenses related to transplantation and catastrophic injury. As a 501(c)3 charitable organization, donations can be made to NTAF by check or PayPal, funds are deposited into an account set up for the patient, and funds are disbursed to you for medical expenses. The NTAF staff can also assist in the actual fundraising efforts, with advice & guidance.
Finding the Money: A Guide to Paying Your Medical Bills by Diane Parmenter Tolley gives ideas for handling the astounding amount of confusing paperwork and billing and insurance associated with transplantation.
Books that provided additional information included:
The Patient from Hell : how I worked with my doctors to get the best of modern medicine and how you can too by Stephen H. Schneider
Living With Lymphoma : A Patient's Guide by Elizabeth M. Adler
Non-Hodgkin's Lymphomas : Making Sense Of Diagnosis, Treatment, & Options by Lorraine Johnston
Brain tumors : leaving the Garden of Eden : a survival guide to diagnosis, learning the basics, getting organized and finding your medical team by Paul M. Zeltzer
Staying Alive : Life-Changing Strategies For Surviving Cancer : Restoring The Body, Mending The Mind by Brenda Hunter
Bald in the Land of Big Hair by Joni Rodgers
Challenge Cancer and Win by Kim Dalzell (nutrition & diet)
A Cancer Battle Plan : Six Strategies For Beating Cancer From A Recovered "Hopeless Case" by Anne & David Frähm
Beating Cancer With Nutrition by Patrick Quillin